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Archive for the ‘Beads of Courage’ Category

Place your Beads of Courage experiences here so we can all share the wonderful stories and strength these young children have.

A huge thankyou from Beads of Courage

Posted by IslaOsborne on December 22, 2011

Hugs all-round

I want to give a huge thank-you to all the amazing people who have donated their work to Beads of Courage this year.

In the six months since NZSAG have been working with The Child Cancer Foundation, we have donated over 1200 unique glass beads to Beads of Courage! That’s an amazing total, especially considering only 25 artists are currently partners in the program.

Donated beads range from traditionally lamp-worked, to fused and kiln-formed as well as beads created in the hot-shop. It is truly inspiring to receive donated packages and I feel privileged every time I open one.

For those of you who are not aware, Beads of Courage is a treatment program administered in New Zealand by the Child Cancer Foundation. Beads of Courage helps children through a very challenging experience. Each child with cancer is given a necklace with their name spelt in beads. They then add to their strand with specific coloured beads to represent every procedure they undergo. The beads document each child’s journey in a positive way. They help give a child the courage to take each difficult new step. Sadly, by the end of a treatment journey, children often have strands of beads longer than they are.

The program has recently been rolled out nationwide, and we need to find 75 glass artists willing to donate 75 handmade ‘milestone’ beads each year, that’s over 5,500 beads.

If you are interested in being a partner in this amazing program, contact me: Isla Osborne on isla.osborne@gmail.com. If you don’t regularly make beads, but have a few lying around the studio that you want to donate, just send them to me and I will make sure they reach their destination.
Isla Osborne 2 Wellpark Avenue, Grey Lynn, Auckland 1021.

Isla

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Beads of Courage needs your rejects!

Posted by IslaOsborne on June 20, 2011

Beads of Courage is organised in New Zealand by the Child Cancer Foundation. The programme supports and strengthens the protective resources in children coping with serious illness.

Each child’s Beads of Courage journey begins when they are given a length of string and beads that spell out their first name. Then, colourful beads, each representing a different treatment milestone, are given to the child to add to their collection throughout their treatment.

The Child Cancer Foundation specifically needs a random assortment of handmade beads for treatment milestones, purple hearts for children celebrating the completion of their treatment and, sadly, butterfly beads for the end-of-life bead program.

It is expected that over the next year, the Child Cancer Foundation will need around 5,000 handmade beads to keep the Beads of Courage program running in New Zealand.

What we need

The Child Cancer Foundation needs to find 75 glass artists, each willing to donate 75 handmade beads a year to Beads of Courage.

If you would like to be a part of this amazing program, please let us know. We will provide you with a welcome pack explaining how Bead of Courage works. Included will be all the packaging you will need for your donations as well as tutorials on how to make Purple Heart beads and Butterfly Beads.

Your name will be listed on the Beads of Courage website as a donating artist and each bead you donate will be packaged with your name attached.

Type of beads

Random assortment
We specifically ask for a random assortment of handmade beads for children to select from for the Act of Courage and Bone Marrow Transplant (recipient and donor) treatment milestones – use your creativity – the sky is the limit! Many beadmakers donate extras from sets, orphans, slightly wonky beads and the beads sitting in bowls around the house. They are all beautiful in their own right and the children love them.

Purple hearts
We appreciate the donation of handmade Purple Heart beads that are given to children who are celebrating the Completion of their Treatment. We prefer hearts with the hole running horizontally through them, but hearts that have a vertical hole are perfectly acceptable – we ask that they be wired with a headpin loop so that they can be strung with the pointed end down.

Butterfly beads
Finally, we appreciate donations to maintain our End-of-Life bead program. Through this program we provide the professional caregivers with a butterfly bead that they may give to a parent who has suffered the loss of a child. Please be sure to make your butterflies very sturdy – these beads are a remembrance for the families and must stand up to normal handling. There is a tutorial for making butterflies in your welcome pack.

Large round or heart shaped dichroic beads
Depending on the particular hospital’s preference, we either provide them with butterfly beads or large round or heart shaped dichroic beads for the Beads of Courage Bereavement Program.

Size of beads

Size is not important; we can use all sizes and variations of beads (round, tubular, odd-shaped) for our treatment milestone beads. The size of the mandrel can range, but 3/32 inch works well and will fit the program stinging material. The cord that is used in the program will fit through 1/16 inch bead holes, but 3/32 inch bead holes would be easier for the kids to string. The inside of the bead should be free of bead release. There should be no sharp corners, cracks or protrusions that would easily break off (such as hearts with long, delicate tails) on the beads that are donated.

Beads should be fully kiln annealed. Please remember that these beads are worn and handled by children and should be sturdy enough to stand up to normal wear and tear.

How to register your interest

Please email Isla Osborne at isla.osborne@gmail.com to register your interest in donating to the Beads of Courage program. She will then send you a welcome pack with everything you need to know.

You don’t need to register to donate beads however. If you have a few beads lying around the studio and want to donate them, just send them to Isla and she will anneal them if necessary and package them before sending them on to the Child Cancer Foundation.

All beads can be mailed directly to:
Isla Osborne
Beads of Courage
2 Wellpark Avenue, Grey Lynn, Auckland 1021

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Courage Beads

Posted by BorntoBeadnz on January 10, 2011

Venue to be confirmed. 1st – 31st  March, 2011.
It seems that there truly is no rest for the wicked, so back to your torches in anticipation of yet another great exhibition. Hot on the heels of Lucent and Bead Archeology, we have been offered the opportunity to be part of Child Cancer Month in March 2011. The NZGBA will be working with The Child Cancer Foundation to develop a month-long exhibition of Courage Beads

Courage Beads, to be held in the foyer of the Vero Tower, will highlight the role of the NZGBA within the Beads of Courage programme. It will showcase the work of member artists and raise money for the Child Cancer Foundation.

Submissions could be anything from individual beads to jewellery or sculpture, but must focus on an aspect of the Beads of Courage programme. You may choose to work with heart or butterfly beads, consider the concept of courage, or the journey children take through their treatment process. We are looking for your unique point of view.

You can find entry forms and submission guidelines here, and the important dates are:

Submission Intentions: 21st Jan, 2011

Entry Forms and Submissions: 21st Feb, 2011

Exhibition Opens: 1st March, 2011

Exhibition Closes: 31st March, 2011.

Any questions, feel free to contact me, I’m already looking forward to your submissions.

Contact
Isla Osborne

2 Wellpark Avenue, Grey Lynn, Auckland 1021
isla.osborne@gmail.com 
021 027 22005

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Honoring an Angel – Lady Diana Robisnon

Posted by BorntoBeadnz on November 8, 2010

 Diana was appointed as a Companion of the Queen’s Service Order (QSO) in the 2009 Queen’s Birthday Honours for her more than 30 years of service supporting many, many children with cancer and their families throughout New Zealand.

Diana’s reaction to the announcement was typically humble. “I had no idea I was nominated. I think I’m the winner all round here with the wonderful people we’ve come to know and love. My husband Robbie and I are the privileged ones, meeting the parents, the children, the staff and volunteers, we have, from every walk of life.”

Diana said the award also belonged to her husband of 57 years, Andrew Robinson for his endless support and to her parents’ memory.

CEO Neil Porteous has had the pleasure of meeting Diana and says there couldn’t be a more deserving person to receive the Queen’s Birthday Honour.

The Foundation has already recognised Diana’s generosity and tireless efforts in Christchurch by making her a life member back in 2001 so it is only fitting that the nation now also acknowledges her great work.

Diana’s work helping children with cancer began through a link to her successful career writing children’s books. Her most widely acclaimed book was ‘The Magic of Storytime’. Diana donated the royalties from her nine published books to Child Cancer, which in those days was a developing parents’ support group known as the Hope Group.

It was while working with the Hope Group that someone pointed out a child to Diana and said ‘that little girl’s not going to make Christmas’.

“It was October. She didn’t make Christmas but I was determined she should have a Christmas celebration and so I put on a party for her in October. And that was how our annual Christmas party was born,” Diana says.

Diana and Andrew’s annual Christmas party for the children, families and friends of the Child Cancer Foundation is a huge and much anticipated event on the social calendar. About 300 people attend the festive occasion each year which is held on a lifestyle block at Yaldhurst.

Diana ensures that no detail is left wanting nor expense spared at this magnificent event, all designed to offer the children some delight and respite from their sickness.

A huge decorated marquee is erected and everything you can imagine is available for the children – face painting, merry-go-rounds, pony rides, a bouncy castle, presents handed out by Father Christmas, a barbeque lunch, and to finish off, two Mr Whippy trucks arrive and the children can choose any ice-cream creation they desire.

The next generation of Robinsons get involved, too. Diana and Andrew have four adult children, 14 grandchildren and one great-grandchild. It has become a family tradition for the Robinson offspring to go out and buy and wrap all the gifts for the children and families attending.

Daughter Debby Heard is a professional photographer with her own business and photographs the event each year.

The Christmas party is Diana’s favourite day of the year. “It’s one of the few things that can lift my spirits for the whole year. I wish every working day was like that; it’s just an amazing day. The children seem happier than other children and they appreciate the simple, good things in life,” she says.

Aside from the Christmas party, Diana and Andrew support CCF and its families in many other ways. In the early days of getting CCF established, they held many auctions at their private residence and Diana always helped organise the annual golf tournament, donating all the prizes.

Andrew and Diana helped raise two million dollars for the Bone Marrow Transplant Unit in Christchurch 15 years ago. It was the first time a private interest had ever put a unit into a public hospital at no expense to the taxpayer.

The generous couple always make a significant donation to CCF’s annual Appeal, while different family members volunteer on the streets to collect on the Foundation’s behalf.

And in years gone by, if Diana had heard of a family or child having a bad day, she would turn up at Christchurch Hospital or the Foundation’s Family Place with gifts for the children and make-overs for the mothers.

On one memorable occasion Diana rang up CCF’s Family Support team and asked how many teenagers with cancer were in hospital. She then arrived with five television sets – one for each and every one of them!

At 78 years-old Diana may be less mobile than she used to be but she refuses to retire from being the Foundation’s very own fairy godmother. When she heard of six year-old Ripeka Manawatu’s and her mother Tania’s double cancer diagnosis last year she fossicked about in her drawer and found a special gold bracelet, set aside for children with cancer, to pass on to Ripeka who loves jewellery. The kind and considerate patron also had a special pink wrist corsage sent to Ripeka’s mother, Tania, to wear at the Chandon Supper Club charity event.

Diana says there have been many rewarding moments doing charitable deeds for CCF but she remembers one particularly satisfying instance.

“There was a very sick little boy that I knew and it was apparent this Angel could die at any minute. But incredibly he didn’t, he survived and he went on to become a doctor,” she smiles.

And for this very caring and compassionate woman, that’s what her help is all about; making a difference to the lives of children with cancer.

And in years gone by, if Diana had heard of a family or child having a bad day, she would turn up at Christchurch Hospital or the Foundation’s Family Place with gifts for the children and make-overs for the mothers.

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Win a trip on Air New Zealand for Beads of Courage Rory Gardiner

Posted by BorntoBeadnz on August 2, 2010

In March 2009 6 year old Rory Gardiner was diagnosed with cancer.  After six weeks of intermittent headaches, which Doctors said weren’t serious, two brain tumours were found.  The next nine months of Rory’s life were spent undergoing treatment at Starship Hospital .  Rory has amassed 900 Beads of Courage, testament to seven surgeries, 31 sessions of maximum dose radiation to his brain and spine, and four cycles of high dose chemotherapy with stem cell recovery. 

Rory is now 8, and in remission.  He received wonderful news this week during his quarterly visit to Starship …..  no cancer was detected.  However, Rory will not be given the ‘all clear’ for another 3 years and 8 months.  Rory is an inspiration.  He rarely complains, has never felt sorry for himself, and has remained the bright, cheeky, courageous individual he always has been.  You can read about his journey at www.rorygardiner.co.nz 

A unique opportunity has arisen, thanks to the generosity of Air NZ and the Huapai & Orlando Lions Clubs, for Rory and his family to enjoy a dream holiday at Disneyworld in Florida, USA.  To raise money for the airfares an extremely  rare flight deck experience has been donated for auction.  The lucky winner will be able to fly with the Captain on the flight deck for a return journey to Wellington or Christchurch.         To read about it, or bid, click on the link below.

http://www.biddingforgood.co.nz/Unique-Flight-Deck-Experience,name,100114,auction_id,auction_details

We would appreciate it if you could distribute this email through your networks, to family, friends, and work colleagues, in the hope someone may wish to enjoy this rare experience, and support Rory in his dream.

Thank you.    Best wishes   Leigh Honnor, Sean, Sam and Rory Gardiner

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Beads of Courage

Posted by IslaOsborne on March 5, 2010

Hi guys,

A very quick post to let you know how pleased the Child Cancer Foundation is with all the beads you donate to the Beads of Courage Programme. Every time I get requests for more beads they go out of their way to tell me how much they appreciate all your work, and a few weeks ago I was sent this certificate.

Well done guys, keep them coming!

x Isla

Beads of Courage Certificate

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Beads of Courage Bianca’s story

Posted by BorntoBeadnz on January 28, 2010

Bianca started collecting her Beads of Courage when she was diagnosed with leukemia beginning June 2007.  When she completed her treatment in September 2009, she had around 1,300 beads (including some very special glass beads that were specially made and donated to the Child Cancer Foundation) and on the 11th of September 2009 Bianca got to string the most special bead ever – a special purple heart to celebrate the end of treatment… read more

Simply put, the Beads of Courage programme is the most amazing initiative ever.  Bianca loves showing her beads to others and last year she asked her teacher if she could bring her beads to share with her class and she read a story to them about what leukemia is.  The kids were so excited and so interested in what each bead represented.  They loved trying on the necklaces and it made them feel special that they got to share in this moment.

I guess that is one of the most amazing things about the beads – it is such a visual thing, people instantly get a sense of what the child cancer journey involved and in a way it helps them understand.  It is one thing telling them some of the things your child went through, but when they actually see it all strung together, that is simply mind-boggling.  And for us, it tells a story – that no matter how difficult the road was, it is a testament of how very brave and amazing our daughter was and is.   It is something Bianca can keep and one day when she is an adult, she would be able to share it with her children and grandchildren and tell her story that it is possible to live life despite cancer. 

When a child has cancer they are suddenly thrown into a world where they have to endure one unpleasant and sometimes painful treatment after another, there are no options but just to go ahead with it and whilst at first a sticker or a lollipop could help a child cope after the procedure, soon it simply doesn’t do the trick anymore and that is where the beads are so amazing.  It gives a child (and the parents) something to look forward to.  It helps to prepare a child for something that will be happening.  We had many days where we managed to talk Bianca through a procedure by telling her she would get to choose a special bead afterwards.  It definitely made a huge difference.

Bianca often looked at her beads and said “because I am so very brave” and that is what the beads did for us, it kept Bianca’s spirits up, it kept her believing in herself, it gave her something to look forward to.  And as parents, it helps us help our child cope at a time when we don’t always know how to best prepare our them for what they need to go through, for many of us, we look forward to collecting the beads just as much as our child.

And even though we are done with treatment, I still often look at Bianca’s beads, her story, her journey and I am in awe at just how much we achieved, at how far we’ve come.  The beads are such an amzing concept that we’ve even managed to convince a girl in the US to start collecting beads and then she presented it to her hospital and she managed to get them to start the programme too and even though another mom and her son’s hospital in Australia aren’t participating, she managed to get some affordable beads and they started collecting too. 

It is my heartfelt wish that the wonderful and amazing people who make and donate these beads to kids like Bianca would know just how big a difference they are making.  They are giving something that could be treasured and kept, something to brighten a child’s day and give them something to look forward to, and they really make the journey worthwhile.  It is simply amazing watching a child as they select a very special bead, to watch their face light up and watch them string that bead, and for us when Bianca strung that purple heart – that is a feeling I simply can’t explain.  Thank you so very much!

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Beads of Courage – Rory’s Story

Posted by BorntoBeadnz on January 28, 2010

Neither Rory or I remember when he received his first Beads of Courage.  I know it is written in one of the many notebooks I have filled since he was diagnosed with cancer in March 2009.  The first nine weeks after Rory’s diagnosis are a bit of a blur, punctuated by memories of intense events.  It was a very traumatic time for the whole family as he fought for his life, and we struggled to cope with the reality he had two life threatening brain tumours.  The team on the Neurosurgical ward at Starship Hospital were fantastic, and it was Nurse Specialist Stephanie Moore who closely supported Rory’s care and gave him his first Beads of Courage. 

We knew little about the programme, other than what we had seen on television.  Rory was very impressed when Nurse Steph first lifted the lid on her bead ‘stash’.  The large plastic box was divided into many compartments, each labelled with the treatment which corresponded with the bead inside.  There were a multitude of colours, shapes, and sizes.  Rory and Nurse Steph went through his treatment record and Rory picked out a bead for every procedure he had endured.  I think his first collection numbered over 50.  There was no bead for some of the procedures Rory had endured so he was able to pick a unique handmade Bead of Courage.  Nurse Steph had these special beads in a separate box.  It was always Rory’s favourite task to inspect them and narrow down a small group from which he would make his selection.  A small piece of orange paper comes with each bead, a mini achievement certificate.  On the back I write a description of the bead and the reason Rory earnt it.  They beads were all hard won; enema’s, stitches under local anaesthetic, removal of the femoral iv line in his thigh, a tricky insertion of a new naso-gastric tube.

It was Rory’s job to thread his Beads of Courage onto a string.  This has not always been easy for him to do.  After his surgeries he had left sided weakness, reduced co-ordination, and his eyes weren’t working together.  His hands would shake and it often took a long time to make a match between the bead and string.  But he was determined; I have not threaded a single one.  Each string holds 100 Beads of Courage.  Rory now had seven and a half strings, and continues to earn more beads as he battles for recovery during remission.  Rory is very proud of his Beads of Courage and knows what each type of bead stands for.  Each string is unique and tells a story of his journey with cancer.  The first two strings contain his name, four stars for his surgeries which equated to over 23 hours on the operating table, one for his 7th birthday, 10 unique beads of courage, and a lot of yellow beads for the nights he spent in Starship.  The next two strings contain many purple beads which tell of his battle with infection after surgery, and the many needle pricks (black) he endured as they tried to find the cause and his veins collapsed.  They also contain green beads for the harvesting of his stem cells, and red beads for the blood transfusions which followed.  There are 31 beads which glow in the dark for radiotherapy, and one round green bead with a face for when all his hair fell out.  The next three strings are a rainbow of colours and cover his high dose chemotherapy (ironically this bead is white), numerous tests and scans, and countless antibiotics and le pricks.  The last, and most recent, string contains the purple heart he chose to mark the end of treatment, and a green robot which was made for him at the Born to Bead studio when he visited. 

Everywhere we go people want to see two things, Rory and his Beads of Courage.  When they see the 750 beads which represent what he has endured people are usually blown away, but the enormity of his fight, and by the unique beautiful strings which are a testament to Rory’s courage and endurance.  The strings of beads are handed round regularly at family gatherings, friend’s places, work, and at school.  Several times the strings of beads have been passed around the children during assembly at Dargaville Primary School and when they were returned to Rory you could see he felt the energy of the 300+ pairs of hands. 

The Beads of Courage programme provides a tangible, real, unique way of showing and explaining what children who have fought cancer have endured for a second chance at life.  They instil a sense of pride in the children, and choosing beads and adding them to their strings is something they enjoy doing during the long days of often unpleasant procedures in hospital.  Many of the children have the strings hanging up by their beds in the ward rooms, and the children often comment on how other children’s strings differ from their own.  The introduction of the sibling beads in 2009 has added another dimension to the programme.  Rory’s 10 year old brother Sam also has a string of beads.  The beads are different to those available to children with cancer.  The qualities or characteristics of each bead determine which beads during treatment by Rory, or by Sam and Rory together i.e. strength, love, friendship, bravery.  Most families of children with cancer struggle financially as they are reduced to a single income (often less) to support their children.  We all value the fact the Beads of Courage programme is available for all children as there is no cost involved.

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Beads of Courage Open studio August

Posted by BorntoBeadnz on August 31, 2009

Bianca and her sister having a giggle

Click here to see what their visit to the Born to Bead studio :)

We had the monthly Beads of Courage open studio this last weekend and it was very very special. Little Bianca came around to see the studio and see how we make the beads she’s collected. I recognised one bead from us so that was special to actually see a bead we had created be chosen by Bianca. her family would like to thank all the artists and has created a post on their blog with photos, have a look it was awesome fun. We got given flowers and chocolates, and big hugs and kisses from both Bianca and her sister, Caitlyn. Caitlyn got to ride on dad’s shoulders through the studio while Bianca tried on her glasses. Helen gave a fabulous demonstration and we had a number fo keen volunteers in to clean and package beads. we have added 70 new beads to the program so thank you very much everyone for your kind donation of time and glass.

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Beads of Courage – Bianca’s story

Posted by BorntoBeadnz on August 23, 2009

Hello,

We stumbled across your website and I must say your beads are so beautiful; I just love the photos on your blog of the workshop you held.  Wow, I sure wish I was able to do this.

biancaAnyway, I noticed you are making beads for the Beads of Courage programme and my little girl who is now 6 has been collecting beads since she was diagnosed in June 2007.  She is now nearly done with her leukemia treatment and to date she has collected probably around 1,000 beads.  I’m not really sure as I haven’t counted them recently.  She simply loves her beads and have taken them to school for a show and tell and we recently started with sibling beads for Bianca’s little sister.

Thank you for the wonderful work you are doing!

Here is a link of Bianca at the age of 4 talking about her beads:

http://www.youtube.com/watch?v=CF2oNBRVWw4&feature=channel

Here are some links for you to look at with photos of Bianca and her beads, you’ll have to scroll down to see some of the photos:

http://whitesinnz.blogspot.com/2009/06/looking-back.html  (You’ll have to scroll down the entry to see the photos)

http://whitesinnz.blogspot.com/2009/03/signing-car.html  (scroll down) 

http://whitesinnz.blogspot.com/2009/02/show-and-tell.html

 http://whitesinnz.blogspot.com/2008/12/day-started-just-like-any-other.html

 http://whitesinnz.blogspot.com/2008/10/wish-come-true.html  (scroll down)

 http://whitesinnz.blogspot.com/2008/09/girl-power.html

 http://whitesinnz.blogspot.com/2008/08/introducing-fire-chief-bianca.html

 http://whitesinnz.blogspot.com/2008/03/admitted-to-hospital.html

 http://whitesinnz.blogspot.com/2008_03_09_archive.html

 http://whitesinnz.blogspot.com/2008/03/tv-appearance-at-start-of-ccf-appeal.html

 http://whitesinnz.blogspot.com/2007/11/day-11-delayed-intensification.html

http://whitesinnz.blogspot.com/2007/10/collection-of-beads.html

http://whitesinnz.blogspot.com/2009/07/because-siblings-are-cool-and-special.html

So anyway, we just simply love the beads programme!  Thank you for being part of this.

Lea White (Bianca’s mum)

Our blog:  http://whitesinnz.blogspot.com

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